Sand Springs boy with terminal illness makes progress with new treatment

Posted: 8:28 PM, Dec 06, 2017
Updated: 2017-12-07 04:18:39Z

SAND SPRINGS, Okla. - It's a diagnosis a parent never wants to hear for their child,;but when a doctor told one family their son would only live a couple of years, they never imagined where they'd be thirteen years later. 

 "I'd probably like to hear him say mom," said Sand Springs mother Jana Gundy. 

Her dreams only get bigger. 

"I would love for him to be able to use more of his hands and fingers again."

Because at 13 years old Kyle Gundy has already defied odds. 

"It was mind-boggling to me that he has come this far and that's just the grace of God." 

Doctor's diagnosed him with the disease the FDA  called the most common genetic cause of death in infants. 

Bound to his bed, or a wheelchair, he could make little to no movement. 

 "He pretty much told us that Kyle had SMA and it was terminal, and there was nothing we could do. Just take him home and love him," Jana told 2 Works for You almost eights months ago

He wasn't supposed to live past two, making him a superhero of sorts. 

"I never thought 13 years ago that [a] tiny little vile of liquid injected would stop him from ever losing his movement." 

Since we last met the Gundy's Kyle has received a new treatment making the tiny movements he used to make old news. 

He's now moving his fingers, even giving a smile. 

"It is the best feeling in the world when your son looks at you so proud of himself for the things he can do." 

His thirteenth birthday bringing not only new friends to his walls, but a renewed faith in what God can do. 

"Kyle has a very strong will to live. God has also blessed us with a kid that does well, and obviously Kyle's purpose for being here isn't over." 

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