SAND SPRINGS, Okla. - It's a diagnosis a parent never wants to hear for their child,;but when a doctor told one family their son would only live a couple of years, they never imagined where they'd be thirteen years later.
"I'd probably like to hear him say mom," said Sand Springs mother Jana Gundy.
Her dreams only get bigger.
"I would love for him to be able to use more of his hands and fingers again."
Because at 13 years old Kyle Gundy has already defied odds.
"It was mind-boggling to me that he has come this far and that's just the grace of God."
Doctor's diagnosed him with the disease the FDA called the most common genetic cause of death in infants.
Bound to his bed, or a wheelchair, he could make little to no movement.